My cancer journey.

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Today I have to open a new 1 litre soft pack of injectable Ivermectin.
I brought Ivomec because it has the rubberised injection port and it was still shelf stable even when it was punctured with a sharp to draw off a quantity of drug. It needed to be kept in a cool dark place.
Other injectable Ivermectins, as stated in their directions needed to be disposed of after the seal was punctured which is the main reason why I went with the Ivomec instead.
When I brought the bottles of Ivomec the various stockists only had 1 litre bottles in stock IF you could find them.
Ivomec also comes in 500ml bottles but there were zero available.

Now we are coming up to close to 10 months drawing from this one bottle and the taste has changed and my gut is telling me that it's time to open a new bottle.
The opened bottle is half full.
It's disheartening to throw away half a bottle of Ivermectin - or maybe I could use it for the chickens?
Sometimes buying a larger container of something is a false economy.
I'll do what I have to do to fight my cancer.
I have 2 5ltr bottles of liquid Panacur 100 sitting in my store room that I'm not using anymore now that I've swapped over to the FenBen tablets.

When I stock up on Ivomec again I'll be def getting the 500ml bottles if they're available, even if the price is dearer per 100mls than the bulk 1 ltr bottles, to try and cut down on the waste.
 
Today I have to open a new 1 litre soft pack of injectable Ivermectin.
I brought Ivomec because it has the rubberised injection port and it was still shelf stable even when it was punctured with a sharp to draw off a quantity of drug. It needed to be kept in a cool dark place.
Other injectable Ivermectins, as stated in their directions needed to be disposed of after the seal was punctured which is the main reason why I went with the Ivomec instead.
When I brought the bottles of Ivomec the various stockists only had 1 litre bottles in stock IF you could find them.
Ivomec also comes in 500ml bottles but there were zero available.

Now we are coming up to close to 10 months drawing from this one bottle and the taste has changed and my gut is telling me that it's time to open a new bottle.
The opened bottle is half full.
It's disheartening to throw away half a bottle of Ivermectin - or maybe I could use it for the chickens?
Sometimes buying a larger container of something is a false economy.
I'll do what I have to do to fight my cancer.
I have 2 5ltr bottles of liquid Panacur 100 sitting in my store room that I'm not using anymore now that I've swapped over to the FenBen tablets.

When I stock up on Ivomec again I'll be def getting the 500ml bottles if they're available, even if the price is dearer per 100mls than the bulk 1 ltr bottles, to try and cut down on the waste.
You had to have it! You gotta do what you gotta do!!
 
I've had 3 doses, so far, out of the new Ivermectin bottle and I've started mild herxing again.
The old bottle had obviously lost efficacy and I made the right call starting another.
I can only pray I didn't lose too much ground against the parasite using a weaker drug.
I must have had an idea at the back of my mind because I had bumped my dosage to 2mls per dose.

I'm getting geared up to do the long drive to get the PET scan tomorrow.
I'm doing a mini service on the car -checking fluids, tyres etc and I'll fuel up today and put
the car under the security camera overnight.
 
Just a heads up that I'm home, extremely tired and sore.

I'm going to feed the dog and go to bed,

Thank you for those who prayed for a safe trip.
It was uneventful the my little car ran like a top for the trip down and the trip back.

Thank you.
Thank you for letting us know you are home!!♥️
 
Thank you for letting us know you are home!!♥️

I got on the computer as soon as I got in the door and kicked my shoes off because I knew people would be worried.
I had a hellish night and the pain killers saw some use.
BUT I got home safely and that is what matters.
I'm going to look into a pressure support cushion that I can put on the car seat and see if that helps alleviate the pain in my right hip, groin and buttock.

I'm def going to have to get some compression garments/ braces for my right thigh and knee and see how well they work in cutting down the pain.
I'm sick of reaching for pain killers.
 
You don't realize the support group you have here. We pray for you daily, and your name is mentioned in my G/F's prayer group weekly

I appreciate it and I'm extremely grateful and humbled by the support I receive from this community!
Most times it makes me break down and cry I'm that touched.
The prayer support is the reason why I have lived this long.
This community is a ferocious legion of prayer warriors and I'm proud to be a part of it.
 
I just got notification that I have a phone appointment with the Rock Star Oncologist on Friday.
I knew it was going to be a phone appointment so that isn't a shock but I won't be able to see the scans.
His next physical appointment time was in January and we both agreed that that wasn't acceptable so a phone consult would have to suffice.
I asked the Oncologist if I could access the scan via the patient portal and he said it was up to the Imaging facility who own and run the patient portal.
So, I asked the Imaging facility and they told me they don't allow Pet scans or reports to be released on the patient portal.
They were VERY firm on that.
Bugger.
I know the Oncologist is going to say a lot that I'm going to miss so I'm going to have to ask him to either send me the imaging report or his own summary via e-mail so I can absorb it
 
TG, We had a big accident in 2019 and the hospital we went to was excellent but did not put up PET scans or CT scans on the patient charts.-
And I had three CT scans I needed to send to other specialists. I also needed to see them.
So I asked them to mail me the discs and they did. I have a computer that still has a CD drive in it. I then FedEx’ed them overnight to the other specialists.
It’s lucky I did because I had to discuss it over the phone with several different doctors. Although I didn’t make heads or tails out of everything, at least I could go to scan page they were talking about and then go back and look at it later.

Ask the facility to send it by FedEx or whatever is your fastest services. It’ll be worth whatever you have to pay to get it.
 
TG, We had a big accident in 2019 and the hospital we went to was excellent but did not put up PET scans or CT scans on the patient charts.-
And I had three CT scans I needed to send to other specialists. I also needed to see them.
So I asked them to mail me the discs and they did. I have a computer that still has a CD drive in it. I then FedEx’ed them overnight to the other specialists.
It’s lucky I did because I had to discuss it over the phone with several different doctors. Although I didn’t make heads or tails out of everything, at least I could go to scan page they were talking about and then go back and look at it later.

Ask the facility to send it by FedEx or whatever is your fastest services. It’ll be worth whatever you have to pay to get it.
I agree Solar Geek. Wife has had CT results and I've had MRI results given on CD or DVD to share with other Dr.s Sure won't hurt to ask
 
Right hip, groin and knee in so much pain since the drive to get the PET scan.
I had to change the left side of the couch to lay on because laying on the right side put too much pressure on the area.

I'm on the verge of another diverticulitis attack because I ate garbage when I got home from the PET scan appointment drive.
I ended up getting a cheese and garlic pizza without taking the apple cider vinegar caps before and after I ate it and I'm paying for it now.


I got a text message that my Oncologist now has all the imaging and report from my PET scan ready for tomorrow morning's phone appointment.

I'm very sore, tired and weepy atm.
I probably need a nap.
 
Right hip, groin and knee in so much pain since the drive to get the PET scan.
I had to change the left side of the couch to lay on because laying on the right side put too much pressure on the area.

I'm on the verge of another diverticulitis attack because I ate garbage when I got home from the PET scan appointment drive.
I ended up getting a cheese and garlic pizza without taking the apple cider vinegar caps before and after I ate it and I'm paying for it now.


I got a text message that my Oncologist now has all the imaging and report from my PET scan ready for tomorrow morning's phone appointment.

I'm very sore, tired and weepy atm.
I probably need a nap.
I hope and pray you get some sleep!! Most of all praying for amazing scan results!! May you rest until the BEST news of your life comes!
 
I hope and pray you get some sleep!! Most of all praying for amazing scan results!! May you rest until the BEST news of your life comes!

From your lips to God's ears my Sister.
I'm excited and nervous and all I can really do is put my trust in the Creator and know he has me cradled in the palm of his hand.
 
Satan is on the war path with me again.

The Oncologist was supposed to ring at 9.45 am yesterday.
Nothing....all damned day!
Waited until 4.00pm just before the clinic closed for the weekend to politely (and through grit teeth) ask when he was going to ring.
Apparently he had left early and he was already on a plane to go home for the weekend.
The receptionist had no idea why he didn't ring and said she was hopeful that he "might" ring me when he got home later in the evening.
NOPE.
So as it stands I have no damned clue when this turkey is going to ring me with my results.
These people don't work on weekends so I'm not putting any hope in a phone call over the weekend.

My human self is having a huge problem processing my anger over this.
I know I'm going to have to call on God to pour out his blessings upon this person
but it's extremely hard and my pride, ego, anger and hurt feelings are making it extremely difficult.

Pragmatically, lashing out at this jackass will solve nothing and get me nothing except give me a temporary feeling of justification and put salve on my outrage and also pragmatically, I jumped through so many hoops already to get this scan to baulk at this last hurdle out of anger and pride.

Bamboo doesn't break in hurricanes because it's flexible.
Tall trees break during hurricanes because they're rigid.
Neither the tree or the bamboo choose the hurricane if given the choice.
It's a devastating phenomenon that they can't escape and have to endure.

In this situation I've got the choice to be either mentally flexible or rigid.
Both mindsets have the same results as either the tall tree or the bamboo.

In this instance a bamboo mentality serves me better.
 

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