My cancer journey.

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Tank-Girl said:
Awesome pain free night with no top up shot.
I had a top up to have a shower this morning but I am almost weeping in gratitude to be pain free.
Not a level 3 or 4 pain level but a true 0.

Praise be to the almighty God for the palliative care team.

Most especially praise God Almighty for my beautiful and faithful brothers and sisters in Christ Jesus for your prayers.
Thank you..
Thank you
Thank you!!!!!!
Click to expand...
Me too - for you! That's awesome ❤️❤️❤️❤️❤️
 
Tank-Girl said:
Awesome pain free night with no top up shot.
I had a top up to have a shower this morning but I am almost weeping in gratitude to be pain free.
Not a level 3 or 4 pain level but a true 0.

Praise be to the almighty God for the palliative care team.

Most especially praise God Almighty for my beautiful and faithful brothers and sisters in Christ Jesus for your prayers.
Thank you..
Thank you
Thank you!!!!!!
Click to expand...
♥️😊♥️😊♥️
 
They started at 3 in the afternoon with my 2 part chemo.
The canulars they put in was working really well up until the fist drug finished and they started the half hour flush with the saline.
The vein blew and I got a hematoma.
Then they had to try to put in a new canular.
No good.
Multiple tries from different doctors with no success.
The veins are blowing.

I got 3 new large hematoma sites.

The plan is to wait for the special veins team to put in a canular with an ultrasound tommorow morning and spike another bag of the second chemo drug and give it to me then.

They spiked the second drug ready to run it after the flush and that's now wasted and has to be disposed of.

None of this is ideal.
If there are going to be complications then it looks like I'm your girl!!!😁😂🤣
 
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Tank-Girl said:
They started at 3 in the afternoon with my 2 part chemo.
The canulars they put in was working really well up until the fist drug finished and they started the half hour flush with the saline.
The vein blew and I got a hematoma.
Then they had to try to put in a new canular.
No good.
Multiple tries from different doctors with no success.
The veins are blowing.

I got 3 new large hematoma sites.

The plan is to wait for the special veins team to put in a canular with an ultrasound tommorow morning and spike another bag of the second chemo drug and give it to me then.

They spiked the second drug ready to run it after the flush and that's now wasted and has to be disposed of.

None of this is ideal.
If there are going to be complications then it looks like I'm your girl!!!😁😂🤣
Click to expand...
Well dang girl, you got the special veins team called on you😮! Didn't even realize there was such a thing!! Glad there is! praying all goes well so you can get this started and get rid of this cancer! Much love and hugs!!♥️
 
Wow! Here they don't do chemo through a regular IV. Due to the toxic nature of the chemo, they will start a central line in the chest or a PICC line in the arm. The reason is that if the chemo leaches into the surround tissue when a vein blows, then it could damage that tissue. So, if they are doing chemo through an IV and you notice any burning or swelling in that area, alert someone right away. Also, chemo is typically done in a series, so if you have a central line or PICC they can use that for future infusions, especially since the veins will get more fragile with future infusions. I wonder why they're not doing a PICC or CL?

As always, I am praying for you. I ask Jesus to give you the strengh to walk your path with him and to ease your pain and suffering along your journey. You do not walk this path alone. Thank you for updating all of us on your progress. I am so grateful to read your posts. You are an inspiration!:huggs:
 
angie_nrs said:
Wow! Here they don't do chemo through a regular IV. Due to the toxic nature of the chemo, they will start a central line in the chest or a PICC line in the arm. The reason is that if the chemo leaches into the surround tissue when a vein blows, then it could damage that tissue. So, if they are doing chemo through an IV and you notice any burning or swelling in that area, alert someone right away. Also, chemo is typically done in a series, so if you have a central line or PICC they can use that for future infusions, especially since the veins will get more fragile with future infusions. I wonder why they're not doing a PICC or CL?

As always, I am praying for you. I ask Jesus to give you the strengh to walk your path with him and to ease your pain and suffering along your journey. You do not walk this path alone. Thank you for updating all of us on your progress. I am so grateful to read your posts. You are an inspiration!:huggs:
Click to expand...
I have a rare genetic disorder called Ehlers Danlos syndrome - my genes have the wrong recipe to make healthy collagen.
My veins are not only very fragile they aren't very straight.
The were worried about threading a PICC line into what amounts to a very fragile ball of tangled wool.
I had a second smaller cardiac event yesterday morning and the big juicy obvious veins in the crock of my elbows are now off limits to the chemo team and now are reserved for the cardiologist team only in the event of another cardiac event which I think is fair enough considering how they can't figure out what is causing the events in the first place.
I know exactly WHO is causing it but I don't think it would be considered a medical opinion.
 
Tank-Girl said:
I have a rare genetic disorder called Ehlers Danlos syndrome - my genes have the wrong recipe to make healthy collagen.
My veins are not only very fragile they aren't very straight.
The were worried about threading a PICC line into what amounts to a very fragile ball of tangled wool.
I had a second smaller cardiac event yesterday morning and the big juicy obvious veins in the crock of my elbows are now off limits to the chemo team and now are reserved for the cardiologist team only in the event of another cardiac event which I think is fair enough considering how they can't figure out what is causing the events in the first place.
I know exactly WHO is causing it but I don't think it would be considered a medical opinion.
Click to expand...
My ex has POTS and a lot of the same vein issues with them being tiny, weak & going weird directions. One place they always had to have the Life Flight helicopter paramedic install her IVs and another place got a pediatric nurse with baby needles. Ultrasounds definitely always made it easier!
Praying for better success in round 2, speedy death to the parasite and lots of pain relief and rest for you!
 
Last night I was pain free and slept well after the fluster cluck last night with my canular, the chemo etc.

The chemo drug I got first was the paclitaxel and now I'm waiting on the carboplantin.
I have no idea if administering these two drugs so far apart deminishes the efficacy of them both.
One of many questions I need to ask the teams when they do their rounds.
 
TeeJ said:
My ex has POTS and a lot of the same vein issues with them being tiny, weak & going weird directions. One place they always had to have the Life Flight helicopter paramedic install her IVs and another place got a pediatric nurse with baby needles. Ultrasounds definitely always made it easier!
Praying for better success in round 2, speedy death to the parasite and lots of pain relief and rest for you!
Click to expand...
Pots and EDS are closely associated with one another and a large portion of people suffering with one will have the other.
I have no idea if this is a coincidence or a werid medical anomaly.
 
Nothing is going to happen now until Monday morning now with the special veins team not coming in till Monday morning to put in a canular via ultrasound.
Everything hinges on their success or failure.
The oncologist team said it simply couldn't be helped that the two drugs are being administered so far apart time wise.
He's unwilling to do a permanent access line - PICC or Port unless forced to do so by the failure of the special veins team to put in a canular.
Once again they are being prohibited from putting in a canular in the crook of my elbows by the cardiologist emergency team who want this high flow access site free, clear and in the best possible condition in case of another emergency with my heart.
 
Tank-Girl said:
Nothing is going to happen now until Monday morning now with the special veins team not coming in till Monday morning to put in a canular via ultrasound.
Everything hinges on their success or failure.
The oncologist team said it simply couldn't be helped that the two drugs are being administered so far apart time wise.
He's unwilling to do a permanent access line - PICC or Port unless forced to do so by the failure of the special veins team to put in a canular.
Once again they are being prohibited from putting in a canular in the crook of my elbows by the cardiologist emergency team who want this high flow access site free, clear and in the best possible condition in case of another emergency with my heart.
Click to expand...
I'll admit I don't know much about the mechanics of chemo and it's delivery. Since the cardiologists don't want to block their access to the elbow area, is it possible to use your knee area?

I'll be keeping on the prayers for you Tank-Girl. Don't forget to laugh, alot. It releases your body's naturally made interferon. I know that is geared toward fighting viruses but laughing feels good and the added protection doesn't hurt either.
 
Pearl said:
Yes, praying for that! Praying your bowels do what they need to do so you have no set backs and can get some rest!!
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Yes and Amen!
They with held some bowel meds because of the chemo thinking the chemo would give me diarrhea. Nope.
Pearl said:
Yes, praying for that! Praying your bowels do what they need to do so you have no set backs and can get some rest!!
Click to expand...
 
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