My cancer journey.

[Tank-Girl]

Lots of people you will never meet are still praying for you.
Have you tried adding miso soup to your diet? Just wondering. Love you! You are so cool. So smart. So tenacious.

YES!
I love it and it's one of the few things that don't have me doubled over in pain.
It's so soothing and nourishing.
I buy one that has wakame seaweed in it.

 

[Patchouli]

That is great to hear about the miso soup!!!

 

[Tank-Girl]

Praise report!

I went back onto taking a shot glass of apple cider vinegar with the mother morning and night and clear fluids and I'm in no pain!
No pain last night but the usual cancer temp spikes.
I tip for taking the apple cider vinegar shots-
Have a glass of water ready for after you take the shot.
Take a mouthful of the water, flip your head back and gargle and swish your mouth.
The vinegar burns the back of your throat and the acid is bad for your teeth.
It really does help stop the burn and the fumes.

Thank you for praying for me!
All praise be to a gracious and loving GOD!

 

[Neb]

Praise report!

I went back onto taking a shot glass of apple cider vinegar with the mother morning and night and clear fluids and I'm in no pain!
No pain last night but the usual cancer temp spikes.
I tip for taking the apple cider vinegar shots-
Have a glass of water ready for after you take the shot.
Take a mouthful of the water, flip your head back and gargle and swish your mouth.
The vinegar burns the back of your throat and the acid is bad for your teeth.
It really does help stop the burn and the fumes.

Thank you for praying for me!
All praise be to a gracious and loving GOD!

Thank God.

Can you see a doctor with all of your notes?

Thet may be able to offer some insight ?


Ben

 

[snappy1]

Ben, I can't imagine any cancer doctor has done as much research as Tankgirl. It would be great to find one, though!

 

[Pearl]

And doctors seem to avoid any natural or non protocol treatments!

 

[Tank-Girl]

A mixed night.

Pain on the right groin met site and had to get up half way through the night for 2 paracetamol - the only pain killer I'm allowing myself apart from regular strength Ibuprofen.
I don't count the mini aspirin as a pain killer.

No lower left abdominal diverticulitis pain. YAY!
The Apple Cider Vinegar is doing its job.

This morning cramping and diarrhea.
This I attribute to the Pelvic Radiation Disease and no amount of antibiotics will fix this because it's caused by physiological damage done to the bowel and it functions by the radiation.
The diarrhea is caused by malabsorption of the bile salts and bile acids.
This and gas.
Think of the case of food poisoning or gastro.
Cramping pains, loose stools and gas.
Exactly what the symptoms of PRD are like every trip to the toilet to open the bowels.
Fats and dairy products exacerbate the symptoms.
I'm going to be putting myself on a low dose / half dose of Imodium.
From what I've read in various studies and forums Imodium has been used to
good effect with PRD sufferers.
The thing is to find the right dosage and walk the fine line between normal bowel function and constipation.
With the size of my lesion I cannot afford a single instance of constipation.
In a sick sad way having diarrhea assures me that waste can still move past the lesion and the lesion hasn't grown
so large that my bowel is completely blocked by its intrusion into the bowel's space within my pelvis.

 

[havasu]

Bad choice of words right now, but girl, you impress the crap out of me!

 

[Pearl]

I pray God takes a more merciful hand to you!! God can call you another time, not now!!

 

[Tank-Girl]

Yesterday I braved a small portion of soft mashed sweet and white potatoes with no butter or milk and this morning next to no bowel pain or "extreme" dysfunction.

Right groin to hip met site pain/ throbbing and night time cancer temp spikes still.
I choose to believe it's inflammation caused by die off.

I'll take my wins when I can.

Praise the loving Almighty God.

 

[Bacpacker]

Take them where you can find them TG

Prayers goin up

 

[Caribou]

You are amazing TG.

It is very easy to make your own ACV.

 

[Tank-Girl]

TMI time.

An interesting observation -

Right side groin and right hip joint and top of right hip bone complaining all day yesterday.
I was uncomfortable but didn't take any meds for it.
Opened bowels an hour before going to bed.
My right side trouble makers settled right down to the point it was the smallest niggle.
This is interesting and while it's too early to make a call on it I'm starting to think that
my right side pain may be caused by adhesions, dysfunction and nerve damage in my colon - caused by the radiation.
Waste moving through the colon causing the issues rather than the mets in the right groin lymph nodes and right hip.
Like I mentioned - it's too early to call it yet.
The main focal points of the directed radiation were 1) the cervix and 2) right side of the lesion to stop it intruding further into the bowels space within the pelvis.
It's not outside the realms of possibility that the radiation has done damage to the bowel and its nerves on the right side
.
Other good news no more lower left abdominal diverticulitis pain.

No pain overnight except temperature spikes.
I actually got some sleep!

Minimal cramping and bowel dysfunction.

This morning I have a lot more energy, pain free on my right side and I feel like a Derby winner!

Praise be to our gracious and generous God!

 

[TeeJ]

You are amazing at how you are figuring this all on your own! Although I guess you probably know your own body better than anyone else, so you're the best expert on you

You are an inspiration and in our prayers. Keep me the fight going, you will be victorious - especially with divine help!

 

[Pearl]

Sleep is SO IMPORTANT for your body to fight and heal! Hope you can continue to get good sleep!!

 

[Tank-Girl]

Not looking forward to an hour and a half round trip to see my GP to get a specialist appointment.
Thankfully the specialist does physical out patient appointments in the flesh at the local hospital
for the initial consult and does tellie health/ zoom calls and organises
testing from their main office and then notifying the GP what the treatment plan is and what medications are required.

 

[Tank-Girl]

Praise Report.

PAIN FREE!
No pain in the right groin, right hip joint, right inside top of hip, outside top right of hip, left outside hip, right knee.

NONE!
Gone!

Minimal pain and bowel dysfunction.

Minimal night sweats.
More sleep last night.

I'm so broken down with humble tears of gratitude and wonder!
My tears are precious to THE Creator God so I have been anointing my main lesion and met sites with my tears in Jesus's name.

Psalm 23
King James Version
23 The Lord is my shepherd; I shall not want.

2 He maketh me to lie down in green pastures: he leadeth me beside the still waters.

3 He restoreth my soul: he leadeth me in the paths of righteousness for his name's sake.

4 Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me.

5 Thou preparest a table before me in the presence of mine enemies: thou anointest my head with oil; my cup runneth over.

6 Surely goodness and mercy shall follow me all the days of my life: and I will dwell in the house of the Lord for ever.

AMEN.

 

[Pearl]

Praise Report.

PAIN FREE!
No pain in the right groin, right hip joint, right inside top of hip, outside top right of hip, left outside hip, right knee.

NONE!
Gone!

Minimal pain and bowel dysfunction.

Minimal night sweats.
More sleep last night.

I'm so broken down with humble tears of gratitude and wonder!
My tears are precious to THE Creator God so I have been anointing my main lesion and met sites with my tears in Jesus's name.

Psalm 23
King James Version
23 The Lord is my shepherd; I shall not want.

2 He maketh me to lie down in green pastures: he leadeth me beside the still waters.

3 He restoreth my soul: he leadeth me in the paths of righteousness for his name's sake.

4 Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me.

5 Thou preparest a table before me in the presence of mine enemies: thou anointest my head with oil; my cup runneth over.

6 Surely goodness and mercy shall follow me all the days of my life: and I will dwell in the house of the Lord for ever.

AMEN.

 

[Bacpacker]

Praise the Lord

 

[Neb]

Praise Report.

PAIN FREE!
No pain in the right groin, right hip joint, right inside top of hip, outside top right of hip, left outside hip, right knee.

NONE!
Gone!

Minimal pain and bowel dysfunction.

Minimal night sweats.
More sleep last night.

I'm so broken down with humble tears of gratitude and wonder!
My tears are precious to THE Creator God so I have been anointing my main lesion and met sites with my tears in Jesus's name.

Psalm 23
King James Version
23 The Lord is my shepherd; I shall not want.

2 He maketh me to lie down in green pastures: he leadeth me beside the still waters.

3 He restoreth my soul: he leadeth me in the paths of righteousness for his name's sake.

4 Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me.

5 Thou preparest a table before me in the presence of mine enemies: thou anointest my head with oil; my cup runneth over.

6 Surely goodness and mercy shall follow me all the days of my life: and I will dwell in the house of the Lord for ever.

AMEN.

Thank God I was able to read a post like that from you!

At this point it may be a great time to go...

Wait what?

What did we do last?
What was the last thing that changed?
Can we repeat it?

But those questions come after (as you have done!) we say ...

Thank God!

Ben

 

[Patchouli]

Prayers still going up for you as promised. You're a miracle. Have faith, Believe, and bring a shovel. You are an example of His love for us, an example of your own strength and faith.
Well, that might not have sounded right about the shovel part...but to keep things progressing, there's work we need to do as well. Not sure how much gets lost in the culture shift/translation sometimes.

 

[Tank-Girl]

Prayers still going up for you as promised. You're a miracle. Have faith, Believe, and bring a shovel. You are an example of His love for us, an example of your own strength and faith.
Well, that might not have sounded right about the shovel part...but to keep things progressing, there's work we need to do as well. Not sure how much gets lost in the culture shift/translation sometimes.

Thank you my Beautiful Sister in Christ.

Not for one second do I think I'm cured but I believe it's HUGE progress.

I'm planning on asking my epic Genesis Care oncologist for a PET scan at the end of November to
see how things are progressing.
Until then it is all about keeping the faith and staying on protocol.

 

[Haertig]

What you have accomplished through research, treatment choices, faith and pure determination is nothing short of phenomenal. I am duly impressed. Keep going, and keep getting better!

 

[Pearl]

Thank you my Beautiful Sister in Christ.

Not for one second do I think I'm cured but I believe it's HUGE progress.

I'm planning on asking my epic Genesis Care oncologist for a PET scan at the end of November to
see how things are progressing.
Until then it is all about keeping the faith and staying on protocol.

I have wondered when you would be able to have another scan! Hope the oncologist gets it done. No doubt you have made great progress, but would be nice to see it!!

 

[Tank-Girl]

Trying out a "plant based diet" that's recommended by other cancer survivors.
I went shopping for plant based groceries and then blotted my copy book by buying sausage rolls and a coke from a bakery on the way back to the car!
Whooops!
I utterly despise the vegan cult which is a bastion of hangry attention seekers, hysterical teenage girls and pasty beta soy boys.
One of my more pithy Uncles said it best.."How do you know there's a vegan in the room? Don't worry! They'll tell you!"

I have been trying plant based plain soy Greek style yoghurt which tastes ok- when compared to wallpaper paste and elmer glue, various nut milks and I have to say my pelvic radiation/ colon HATES them and duly makes me pay in spades for the insult by having me doubled over in pain, sweats, bloating, gas, cramping and unstoppable liquid bowel motions.
No one light a match!

I still haven't tried the gastro stop yet.
I have to admit that I'm terrified that I'm going to give myself a bowel blockage and end up in the hospital.

I'm figuring out that the majority of my pain now is associated with bowels.

Also I've also got a pretty good gut feeling that the pelvic radiation has thrown me head long into fully blown menopause.
Trying to figure out if the temperature spikes are menopausal hot flushes or cancer fevers.
There is a very good possibility it's both and the little cynical voice in my head says "That's just the way I roll. Why have something simple and straight forward when I can have layers of complications! "
And that voice in my head would be right.
A blood test would give a clearer picture as to what's happening but it's not as if they could do anything about either.
HRT - hormone replacement therapy, is associated with a lot of female cancers and a lot of HRT's are derived from pregnant mare urine.
These horses are kept in filthy conditions in tiny pens like battery chickens and bitches in puppy mills.
I'm just going to have to grit it out like every other woman before me has done.

 

[Patchouli]

You know that nuts have some estrogenic activity, very small amount, but when nuts are turned into milk, it takes so much of them to make the milk, which is an amount we normally wouldn't eat at one time.
Some will tell me they are vegetarians while their diet is mainly based on dairy products, pasta, and peanut butter. Like, what are vegetables.
Have you looked into using tahini? It acts as progesterone and can help when going through menopause if used enough. I don't know if this is the wrong direction for you, or not.
Do you use spelt flour instead of other flours? Ancient grain. You probably know this. You don't have to answer, just throwin' it out there.
Just added your name again for prayer. It is always active.

 

[Pearl]

Trying out a "plant based diet" that's recommended by other cancer survivors.
I went shopping for plant based groceries and then blotted my copy book by buying sausage rolls and a coke from a bakery on the way back to the car!
Whooops!
I utterly despise the vegan cult which is a bastion of hangry attention seekers, hysterical teenage girls and pasty beta soy boys.
One of my more pithy Uncles said it best.."How do you know there's a vegan in the room? Don't worry! They'll tell you!"

I have been trying plant based plain soy Greek style yoghurt which tastes ok- when compared to wallpaper paste and elmer glue, various nut milks and I have to say my pelvic radiation/ colon HATES them and duly makes me pay in spades for the insult by having me doubled over in pain, sweats, bloating, gas, cramping and unstoppable liquid bowel motions.
No one light a match!

I still haven't tried the gastro stop yet.
I have to admit that I'm terrified that I'm going to give myself a bowel blockage and end up in the hospital.

I'm figuring out that the majority of my pain now is associated with bowels.

Also I've also got a pretty good gut feeling that the pelvic radiation has thrown me head long into fully blown menopause.
Trying to figure out if the temperature spikes are menopausal hot flushes or cancer fevers.
There is a very good possibility it's both and the little cynical voice in my head says "That's just the way I roll. Why have something simple and straight forward when I can have layers of complications! "
And that voice in my head would be right.
A blood test would give a clearer picture as to what's happening but it's not as if they could do anything about either.
HRT - hormone replacement therapy, is associated with a lot of female cancers and a lot of HRT's are derived from pregnant mare urine.
These horses are kept in filthy conditions in tiny pens like battery chickens and bitches in puppy mills.
I'm just going to have to grit it out like every other woman before me has done.

Welcome to menopause!! Don't eat the plant based sausage!! Aren't some plant based foods full of preservatives? You do your homework so I shouldn't worry about you, but I do!!

 

[Tank-Girl]

Welcome to menopause!! Don't eat the plant based sausage!! Aren't some plant based foods full of preservatives? You do your homework so I shouldn't worry about you, but I do!!

Oh goodness YES!
They're touted as a healthy option - even the organic products, and I read the ingredients list and they're a chemical sh!t storm!
The hecking heck!
A lot of Indian food is vegetarian/ vegan and they've been that way for thousands of years, way before the vegan cult was invented.
All of it looks nourishing and wholesome.
I have no idea what the spices are going to do to my digestive disorders but it has to be better for me than all those preservatives and mucked about garbage that they put in the substitute products.

 

[snappy1]

I believe that soy is bad for my thyroid, so none of that for me. I have cut out almost all dairy and meat. Still eat whole wheat low calorie bread, but not much. I am doing Dr. John McDougall's plan.
I use a can of pinto or black beans instead of soy in most recipes.
I feel better already. Only been working at it for a week or so. Still getting some acid as I haven't given up coffee and tea. Although I am having lemon water sometimes.
I don't know if any of that will help your research, but hopeful it will.
You sure have a great attitude while you are going through this!

 

[Caribou]

Don't confuse fresh veggies and processed. Have you considered getting a juicer? You're the expert here but but I would imagine that processed anything is not as good as fresh. Always in my prayers.