My cancer journey.

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well, I see her happy and well, walking her favorite trail...and there is someone with her.
 
Still have a slow bleed happening but did the long drive to get a PET scan.
They somehow managed to get in a shipment of radioactive glucose through all the flooded roads and destroyed bridges.
Radioactive glucose has a very short shelf life so as soon as they got the shipment I got the phone call and I made the decision to risk a hemorrhage out on the road to get it done.
Thank goodness there was excellent mobile coverage for the entire trip.
I'll know the results and the extent of the cancer on wednesday next week.
Until then I'm living my life to the fullest.
Went to a little road side cafe that sells the best crab sandwiches on the planet brought 4 and a few beers and went and sat down on the beach and had a glorious meal watching the sun going down on the ocean.
 
Tank-Girl said:
Still have a slow bleed happening but did the long drive to get a PET scan.
They somehow managed to get in a shipment of radioactive glucose through all the flooded roads and destroyed bridges.
Radioactive glucose has a very short shelf life so as soon as they got the shipment I got the phone call and I made the decision to risk a hemorrhage out on the road to get it done.
Thank goodness there was excellent mobile coverage for the entire trip.
I'll know the results and the extent of the cancer on wednesday next week.
Until then I'm living my life to the fullest.
Went to a little road side cafe that sells the best crab sandwiches on the planet brought 4 and a few beers and went and sat down on the beach and had a glorious meal watching the sun going down on the ocean.
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My prayers are with you TG. So sorry your having to deal with this.
The day at the beach sounds amazing. Glad you got to enjoy it
 
I just got a text from the imaging suites that my MRI images are available for me to view on their web-site.
*sigh*
The report will be posted with the images at 4.45 pm my time.
The CAT scan and PET imaging and reports aren't available yet.

Trying to keep myself busy until 4.45 pm so my imagination doesn't run riot on me.
 
Tank-Girl said:
I just got a text from the imaging suites that my MRI images are available for me to view on their web-site.
*sigh*
The report will be posted with the images at 4.45 pm my time.
The CAT scan and PET imaging and reports aren't available yet.

Trying to keep myself busy until 4.45 pm so my imagination doesn't run riot on me.
Click to expand...
I recently mentioned this to someone else~ we are taught to ask ourselves what the worst case scenario is. Don't do that. Imagine what you want to hear - what is best case scenario? If the worst can happen, so can the best & you have quite a few here praying for that best case picture! 💕
 
Praying for you Tank-Girl.
I told a room full of Doctors and X-ray tech once that the people that come in for routine exams all fear the worst. To the docs and Techs it's just another exam but to the patients it's their life, literally.
Every CT or MRI patient fears the worst and I have seen more than one person leave knowing the fear had came true.
 
When I first opened up the MRI scans I neglected to notice they were MRI and thought for a few HORRIBLE moments I was looking at PET scans.
I had a minor freak out seeing whole white sections / lit up sections in the pelvic images.
*face palms*
Then I noticed 'MRI' in small letters in the bottom left hand corner....and gave myself a good hard mental slap.
I'm not going to have any longevity in this battle if I keep behaving like a panic button.
 
WELP...here we are then...

FIGO rIIIC1 lesion. (Para-aortic nodes negative on staging CT).

So stage 3 cancer and no cancer detected in the para-aortic lymph nodes (PANs) are located around the abdominal aorta and inferior vena cava and are the regional lymph nodes of the intraperitoneal organs.

However..Pathologic right external iliac 18 X 25 mm node.

PET scan will give more information.
 
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There is a hydrogen peroxide protocol set up by Dr. Willaims, I talked with a guy that used H2 O2 to cure his cancer after the VA had sent hime home to die, he did get healthy. There is a lot of negative info against the H2 O2 protocol, but it may be worth doing the research. I have gone through the protocol and I know that some people can't take the high ratio of H2 O2 drops in a cup of water that are in the middle of the protocol, but when the protocol is finished you take a maintenance level of 10 or more drops. The hydrogen peroxide is food grade 35% and you have to handle it with caution, it can burn a hole in leather or your skin, I used a medicine dropper. I quit the maintenance mix a few years back, I don't have any cancer in my family background, as it is, so far my lifespan has outdone my parents and grandparents, on the other hand, over the years I've handled various chemicals that could cause cancer, a few while I was in the Air Force, however now that I am a 79 and still healthy, I'm no longer concerned, I'm more likely to die of old age or in a firefight with bad guys.
 
PET scan still isn't available on my account at the patient portal though I know for a fact that the PET scans, MRI and CT scans and their associated reports are available on a separate system that only the specialists and surgeons have access to.

Got a physical letter in the mail on Friday and a phone call to confirm a phone appointment with the Gynaeology Oncology team on Tuesday.

OK...so my PET scans and reports are being withheld and they're breaking their necks to make sure I'm available for the phone call on Tuesday.....

I'm not stupid by any metric so in this instance reasonable deductions are saying - how to tell me you've got bad news without telling me you've got bad news.

It hasn't changed my outlook at all. If anything it's stiffened my resolve and strengthened my relationship with Christ.
 
@Tank-Girl Prayers are still being sent your way. Keep the faith! One thing I know from MANY years of non stop docs is they generally don’t really care. It’s not them or their family it’s just a “chart”. Hopefully that’s the case here and not worse news.
They’ve been doing that same stuff with my mother in law. It’s very frustrating and helps if you have someone who can fight the fight with you.
Thanks for the updates. Will keep the prayers and healing thoughts coming to you.

I should edit to add, not all docs don’t care. Just like any profession. Some have passion & compassion, some don’t. Burn out is a real problem too.
 
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Tank-Girl said:
PET scan still isn't available on my account at the patient portal though I know for a fact that the PET scans, MRI and CT scans and their associated reports are available on a separate system that only the specialists and surgeons have access to.

Got a physical letter in the mail on Friday and a phone call to confirm a phone appointment with the Gynaeology Oncology team on Tuesday.

OK...so my PET scans and reports are being withheld and they're breaking their necks to make sure I'm available for the phone call on Tuesday.....

I'm not stupid by any metric so in this instance reasonable deductions are saying - how to tell me you've got bad news without telling me you've got bad news.

It hasn't changed my outlook at all. If anything it's stiffened my resolve and strengthened my relationship with Christ.
Click to expand...

My prayers continue for you TG
 
Tank-Girl said:
I'm not stupid by any metric so in this instance reasonable deductions are saying - how to tell me you've got bad news without telling me you've got bad news.
Click to expand...
We can hope that's not the case. Since the typical non-medical person is unable to understand the medical notes attached to some hospital diagnostics, let alone interpret those diagnostics on their own, they may just be holding back so that patients don't draw incorrect conclusions. It may be their hospital policy to hold back raw information that might cause undue alarm, and not an attempt to hide anything. Let's hope that's the case. Worry and concern over the future is sometimes worse than the actual future. I know that's true in my case. So try not to worry that the delay means that the news is bad. Let's hope it's not.
 
I have seen both sides of this. From the patients side they always suspect the worst. From the doctors side they are sometimes restricted by law what they can disclose. I know you will be on pins and needles worrying until your appointment. Nothing anyone can say that will ease that worry but know we are all rooting for you and sending prayers.
Keep the faith and trust God. 🙏✝
 
Patchouli said:
@Tank-Girl i thought usually when it is bad news they are more quickly forthcoming with the news. I’m sorry you have to wait. My hope is that it is unexplainable good news but they want to do more testing of course. Prayers for you.
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I hope so but the lass who spoke to me on the phone says they needed a time where the whole surgical and oncology teams got together to review the tests and imaging and make a treatment plan.
It isn't just one or two specialists calling the shots esp with something as complex as the surgeries and treatment I'll be needing.
I'll get the phone call with the treatment plan after they've finished war gaming their approach and come to a consensus.
 
Tank-Girl said:
I hope so but the lass who spoke to me on the phone says they needed a time where the whole surgical and oncology teams got together to review the tests and imaging and make a treatment plan.
It isn't just one or two specialists calling the shots esp with something as complex as the surgeries and treatment I'll be needing.
I'll get the phone call with the treatment plan after they've finished war gaming their approach and come to a consensus.
Click to expand...
I still hope and pray that this is a plan with hope and time and healing. And you are still fighting it which is a good thing. 💗
 
Tank-Girl said:
I hope so but the lass who spoke to me on the phone says they needed a time where the whole surgical and oncology teams got together to review the tests and imaging and make a treatment plan.
It isn't just one or two specialists calling the shots esp with something as complex as the surgeries and treatment I'll be needing.
I'll get the phone call with the treatment plan after they've finished war gaming their approach and come to a consensus.
Click to expand...
This could also be a good thing - you'll be getting the expertise of multiple professionals rather than just one or two. 🙏💖
 
viking said:
There is a hydrogen peroxide protocol set up by Dr. Willaims, I talked with a guy that used H2 O2 to cure his cancer after the VA had sent hime home to die, he did get healthy. There is a lot of negative info against the H2 O2 protocol, but it may be worth doing the research. I have gone through the protocol and I know that some people can't take the high ratio of H2 O2 drops in a cup of water that are in the middle of the protocol, but when the protocol is finished you take a maintenance level of 10 or more drops. The hydrogen peroxide is food grade 35% and you have to handle it with caution, it can burn a hole in leather or your skin, I used a medicine dropper. I quit the maintenance mix a few years back, I don't have any cancer in my family background, as it is, so far my lifespan has outdone my parents and grandparents, on the other hand, over the years I've handled various chemicals that could cause cancer, a few while I was in the Air Force, however now that I am a 79 and still healthy, I'm no longer concerned, I'm more likely to die of old age or in a firefight with bad guys.
Click to expand...

The chlorine dioxide protocol is more effective and safe.. It doesn't damage the healthy cells that H2O2 does.
 
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