My cancer journey.

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Tank-Girl said:
War gaming if I can't get anymore fenben tablets or they are too expensive to buy.
I would immediately start to cut my dose from 1000mg per day to 222mg per day and then I would triple my ivermectin dosage.
If I ran out of fenben tablets I would replace it with the fenben liquid with a 2.2ml / 222mg dosage and still be on triple ivermectin dosage.

The exotic sups like DIM, berberine etc would be the hard part to keep up along with the fenben.
The easiest to find which I can get at the chemist and the supermarket and are "mainstream" are curcumin, garlic, resveratrol, and live detox sups like milk thistle.

In the mean time while I can find them and I can still afford to buy them I'll keep taking my current dose and keep buying extra every pension to squirrel away until I can't anymore.

From everything I'm reading and seeing while ignoring the obvious hysterics, grifters and shysters, we don't have much time left to stock up.

Did Noah stop loading animals and supplies when he saw storm clouds gather and when that first fat rain drop hit him?
I don't think he did.
I think he stepped it up the pace all the while thanking GOD for his wisdom and for the generous gift of time...while adding fevent prayers on the fly for strength and guidance along the lines of - "please Lord don't let me screw this up!"
One I use on the daily!
Click to expand...

You could start CDS cancer treatment protocol and never worry about shortages or being able to afford it. I believe it will work great for you.
 
Home made Transdermal Ivermectin Patches.

I wondered if I could apply the same methodology I used for the FenBen transdermal patches to create a ivermectin patch.
Firstly I had to be sure that there were no chemical reactions between the DMSO and the Ivermectin.
I did exhaustive searches on line over multiple search engines and could come up with nothing.
Yes, there are drug lists with "known" adverse interactions but unfortunately, it seems that no one has mixed DMSO in any strength or dilution with Ivermectin.
Once again I was going to have to be not only my own researcher but guinea pig as well.

I took 5mls of 50% diluted DMSO/ distilled water and poured it into a lab glass graduated medicine glass.
I added 5 mls of Ivermectin and stirred with a glass rod and watched for any physical, visible reactions.
There were none.
No bubbling or visible fumes, or off gassing.
The bottom of the medicine glass was not warm - chemical reactions can, in some instances produce heat.
Not in this case.
There was no discoloration of the liquid or change of smell.

Then I stepped it up a notch and took a glass eyedropper and put a tiny smear on the inside of my wrist.
I did this over the bathroom basin with the tap on full, ready to flush my skin if there was a negative reaction.
Within 10 mins there was no reaction.
No stinging, no redness.
I rinsed the Ivermectin solution off.

I then made a waterproof dressing with the medical waterproof film and the sterile gauze swabs.
I poured what was left of the Ivermectin solution onto the dressing and applied it over the painful met site, checked it wasn't leaking and went about my day.

The met site was more painful within an hour of putting the patch on.
I peeled back the dressing but the skin wasn't inflamed so I patted it back into place.
I'm putting the increased pain up to inflammation of the met itself.
Good.
In some ways pain is a good indicator.
Nutty but true.
A met that is attacked will swell and become inflamed causing localised pain.

I have been tinkering with my pain meds in trying to get the correct combination and titration of drugs
to alleviate my pain so I can sleep at night with having to break into my Endone stash or what is left of my RSO.
I think I found it -
2 x 200mg Ibuprofen plus 2 x 10mg Loratadine.
This works better and has better traction over the pain than 2 x 220mg of Ibuprofen plus 2 x 665mg Osteo Paracetamol.

I believe the antihistamine action of the Loratadine is the thing that is making the difference.
I am beyond relieved that I have found a combination and dose that works.
 
Tank-Girl said:
Home made Transdermal Ivermectin Patches.

I wondered if I could apply the same methodology I used for the FenBen transdermal patches to create a ivermectin patch.
Firstly I had to be sure that there were no chemical reactions between the DMSO and the Ivermectin.
I did exhaustive searches on line over multiple search engines and could come up with nothing.
Yes, there are drug lists with "known" adverse interactions but unfortunately, it seems that no one has mixed DMSO in any strength or dilution with Ivermectin.
Once again I was going to have to be not only my own researcher but guinea pig as well.

I took 5mls of 50% diluted DMSO/ distilled water and poured it into a lab glass graduated medicine glass.
I added 5 mls of Ivermectin and stirred with a glass rod and watched for any physical, visible reactions.
There were none.
No bubbling or visible fumes, or off gassing.
The bottom of the medicine glass was not warm - chemical reactions can, in some instances produce heat.
Not in this case.
There was no discoloration of the liquid or change of smell.

Then I stepped it up a notch and took a glass eyedropper and put a tiny smear on the inside of my wrist.
I did this over the bathroom basin with the tap on full, ready to flush my skin if there was a negative reaction.
Within 10 mins there was no reaction.
No stinging, no redness.
I rinsed the Ivermectin solution off.

I then made a waterproof dressing with the medical waterproof film and the sterile gauze swabs.
I poured what was left of the Ivermectin solution onto the dressing and applied it over the painful met site, checked it wasn't leaking and went about my day.

The met site was more painful within an hour of putting the patch on.
I peeled back the dressing but the skin wasn't inflamed so I patted it back into place.
I'm putting the increased pain up to inflammation of the met itself.
Good.
In some ways pain is a good indicator.
Nutty but true.
A met that is attacked will swell and become inflamed causing localised pain.

I have been tinkering with my pain meds in trying to get the correct combination and titration of drugs
to alleviate my pain so I can sleep at night with having to break into my Endone stash or what is left of my RSO.
I think I found it -
2 x 200mg Ibuprofen plus 2 x 10mg Loratadine.
This works better and has better traction over the pain than 2 x 220mg of Ibuprofen plus 2 x 665mg Osteo Paracetamol.

I believe the antihistamine action of the Loratadine is the thing that is making the difference.
I am beyond relieved that I have found a combination and dose that works.
Click to expand...
And because it makes no money for pharma, you do have to be your own guinea pig!
 
I'm very, very tired.
Pain running all the way down the right groin, ham string, swollen knee to my calf.
Ham string and inner thigh area is so tender that the skin really can rest on anything.
The slip covers on the couch are a coarse canvas and it's too rough and feels like sand paper.
I've put an extremely soft bamboo comforter down on the couch so it doesn't rub and hurt so much.
I put that same comforter on my bed to lay on when I try to get to sleep at night.

Yes the dog did do a number on my knee BUT I am also investigating secondary lymphedema.
This can be a side effect of pelvic radiation.
This study shows the pain sites extremely well which leads me to believe that the issue is related to lymphatic drainage issues and the time frame post radiation fits in with when these issues start to manifest.
As time wears on I'm starting to believe the groin pain is more a lymphatic drainage issue caused by radiation rather than a cancerous node simply by virtue of the pain changing and the extent of it.

https://pubs.rsna.org/doi/full/10.1148/radiol.2019191169
 
This is the blog that gave me the hint that my pain might be lymphoedema and that it could be caused by the pelvic radiation I received.
I fell into this rabbit hole but on the whole there aren't too many studies done on the subject just as there aren't many studies done on pelvic radiation disease.
The medical consensus seems to be if it isn't cancer and it's only a side effect of treatment they're not really interested in helping to manage the symptoms.
https://www.jostrust.org.uk/information/living-with-cervical-cancer/prd/symptoms/lymphoedema
 
Pearl said:
I've read that compression bandages and exercise help with lymphoedema. But with that kind of pain and sensitivity that doesn't seem feasible! Will it go away by itself?
Click to expand...

There's no way of telling.
If I wear a light day dress so nothing rubs and go for a walk around the house it does ease the stiffness and swelling of the knee and the overall pain.
I'm looking at seamless calf length compression leggings to see if it helps or has me screaming.
I have had to change which buttock side I lay on while I'm on the couch.
I was starting to get a pressure sore.
 
snappy1 said:
I've seen pressure sores healed by packing it with sugar. I've heard that honey works also.
Click to expand...

Thankfully it hadn't broken the skin yet, so I swapped sides and took all pressure off it and it's coming good.
I've dropped so much weigh and muscle mass that my skin is baggy and there's no real padding between bone ans skin anymore.
 
Tank-Girl said:
Things are less painful with the 2 x 200mg Ibuprofen plus 2 x 10mg Loratadine and the exercises posted in the Jo Trust blog.
Every small improvement and reduction in pain is noticeable and welcomed.

Thank you for your prayers.
Blessings.
Click to expand...
Thank goodness!! And we are here, though so far physically away. You are close in our hearts! I say "we" and "our" because I know others here feel how I do! ♥️ It IS possible to care about someone you have never met!! ♥️
 
Pearl said:
Thank goodness!! And we are here, though so far physically away. You are close in our hearts! I say "we" and "our" because I know others here feel how I do! ♥️ It IS possible to care about someone you have never met!! ♥️
Click to expand...

yes we are ....prayers for all sick or in need !!
 
I rang up to make an appointment excited to see my Radio Oncologist to make a PET scan appointment only to be told he had transferred to a larger facility down south.
It hit me HARD!
Out of the blue I got a bit weepy - this doctor saved my life and it just didn't occur to me that he wouldn't be there
when I got what is going to be a very important PET scan.
Also my referral had lapsed and I had to go back to my GP to renew it.
They did, however make me an appointment with the new Oncologist.
I looked him up.
HHHHHMMMMMM........
South African.
Bugger.
Every South African and German medical professional I've ever been in contact with has been an ass and
their bedside manner has been as gentle and as tactful as a punch in the throat.
The Dutch side of my family are very similar so, luckily I have experience wrangling arseholes.
Oh well more hoops to jump through.
Deal with a pinhead GP surgery receptionist to see a pinhead GP to see a new...iffy Oncologist
in an effort to get a PET scan to see how well the modified Tippen's Protocol worked.
 
Tank-Girl said:
I rang up to make an appointment excited to see my Radio Oncologist to make a PET scan appointment only to be told he had transferred to a larger facility down south.
It hit me HARD!
Out of the blue I got a bit weepy - this doctor saved my life and it just didn't occur to me that he wouldn't be there
when I got what is going to be a very important PET scan.
Also my referral had lapsed and I had to go back to my GP to renew it.
They did, however make me an appointment with the new Oncologist.
I looked him up.
HHHHHMMMMMM........
South African.
Bugger.
Every South African and German medical professional I've ever been in contact with has been an ass and
their bedside manner has been as gentle and as tactful as a punch in the throat.
The Dutch side of my family are very similar so, luckily I have experience wrangling arseholes.
Oh well more hoops to jump through.
Deal with a pinhead GP surgery receptionist to see a pinhead GP to see a new...iffy Oncologist
in an effort to get a PET scan to see how well the modified Tippen's Protocol worked.
Click to expand...
You need the PET scan, you need to see your progress! It will work out, but everything shouldn't be so hard!
 
Tommyice said:
Is the new facility he’s at too far south for you? There is the possibility that these new doctors might have more open views on your treatment and your use of the Tippen’s protocol. We can hope.
Click to expand...

He's 8 hours drive or 1.5 hours flight so it looks like I'll have to suffer the new Oncologist.
I'll button my lips about Tippen's Protocol until I get the results for the PET scan.

I can't say how important this PET and its results are to me.
All the sacrifice, prayer, diet and suffering has led to this point and the results will show if there has been a payoff.
I'm praying for NED...No Evidence of Disease.
Side effects of the treatment like lymphoedema and pelvic radiation disease don't count in a NED diagnosis.
 
Tank-Girl said:
He's 8 hours drive or 1.5 hours flight so it looks like I'll have to suffer the new Oncologist.
I'll button my lips about Tippen's Protocol until I get the results for the PET scan.

I can't say how important this PET and its results are to me.
All the sacrifice, prayer, diet and suffering has led to this point and the results will show if there has been a payoff.
I'm praying for NED...No Evidence of Disease.
Side effects of the treatment like lymphoedema and pelvic radiation disease don't count in a NED diagnosis.
Click to expand...
Just figure out how to get the scan!! You have to!!♥️
 
Pearl said:
Just figure out how to get the scan!! You have to!!♥️
Click to expand...

I've pretty much made up my mind to jump through the hoops and I've already booked the appointment to see the pinhead GP to get the referral.
This GP surgery only has 1 GP working out of it now and he's booked solid until the 24th so I jumped on that slot and called it DONE.
Let's hope he can cope with making a referral because the last GP out of this clinic had so many issues they e-mailed me the referral letter and I then forwarded it via e-mail to the specialist myself!

I should have charged them $90 for my time.
 
Tank-Girl said:
I was still tired, irritable and in a lot of pain and I rolled over and had two loud and sharply painful crunches in my knee and then ......less pain.
A lot less.
I can't say it's fixed but the pain level is less from hip to knee.
I'm still tired and irritable.
I could do with another nap.
Click to expand...
Naps are great! Hope the pain stays away!
 
Tank-Girl said:
I was still tired, irritable and in a lot of pain and I rolled over and had two loud and sharply painful crunches in my knee and then ......less pain.
A lot less.
I can't say it's fixed but the pain level is less from hip to knee.
I'm still tired and irritable.
I could do with another nap.
Click to expand...
That sounds like good news.

Bring it up with your primary??


Ben
 
I've finally got an appointment with the GP and the Oncologist.
This is to get an PET scan appointment.
The nearest PET scan machine is 2 hours south - so 4 hours round trip.
Last time I needed a PET scan it was like it is now weather wise.
Washed out roads and rivers and delays for scans because the roads were't open
and radioactive glucose doesn't have a very long shelf life.

My hip, hamstring and knee are feeling a bit better and they're responding well to anti inflammatories.
I'm getting a lot more sleep than I was.
Yesterday was almost spent entirely in bed napping and getting up to do the vital like toilet the dog, take medications etc.
 
Still trying to figure out my diet.
Being torn in a few different directions and my Pelvic Radiation Disease making life extremely difficult to find something that will keep me nourished, put some weight back on me but won't effect my bowels and have me in agony.
Trying to "starve cancer" when you have all these other treatment related issues on top of it.
I have tried almost every sugar substitute out there and they all taste horrible and they all give me the runs.
I've cutout the real sugar and it's making me miserable and the fake sugar is making me miserable.
At the moment I'm sitting down to a frozen banana, frozen mango, frozen pineapple, soy greek yoghurt and almond milk smoothie.
It's not bad and the frozen fruit gives it a ice cream like consistency.

From the best I can work out the best diet is low GI with fish as the protein.

I really want a bloody huge steak and a bowl of ravioli bolognese topped with a lake of triple cheese bechamle sauce, slightly browned and crisped on top under the broiler.
 
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